Background
Narcolepsy is a rare, chronic hypersomnolence disorder characterized by debilitating symptoms, including excessive daytime sleepiness (EDS), cataplexy, and disrupted nighttime sleep.
Symptoms most typically appear during adolescence2; however, previous reports suggest that diagnosis can be complicated by lack of symptom recognition or misdiagnoses and may be delayed by >10 years.
Real-world information and experiences from people with narcolepsy (PWN) may be better captured within a closed patient community.
Objective
To further characterize the many struggles and unmet needs of PWN, passive social listening was used to explore how PWN describe the condition using their own words.