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Background People with hidradenitis suppurativa (HS) often experience feelings of stigma.1 This study aimed to assess how they feel about the impact of HS on their sense of self and how they think others perceive them. Objective To evaluate sources of stigma in HS. To evaluate the dynamics and impact of internal and external stigma […]

Purpose To share a successful example of building a rare disease social network by creating a scalable, connectedcommunity and making patient education readily accessible. Background MyHealthTeam (MHT) has created 61 social networks for people living with chronic health conditions, including 14 rare diseases. The social networks provide individuals living with these conditions an opportunity to […]

Introduction Research was undertaken to better understand awareness and experiences with biomarker testing among patients living with Non-Small Cell Lung Cancer (NSCLC). Additionally, research sought to understand potential health inequities in terms of access to biomarker testing.

Background MS is a progressive disease that can have a devastating impact on quality of life. Yet obstacles exist for getting patients to start on or stay on a DMT to help slow progression. Understanding patient concerns and highlighting the benefits of DMTs can enable neurologists to help their patients overcome usage barriers. Objectives Research […]

Background Equal access to and quality of care are critical for creating positive outcomes for women living withbreast cancer. Despite increased awareness of health outcome disparities in the US, Black and Latina women still experience unique challenges in their breast cancer journey. Objectives To better understand potential disparities in healthcare quality, affordability, and access based […]