Hope for the 1 in 10:
Redefining Your Rare Disease Strategy
Transform patient outcomes through privacy-safe data and AI-powered solutions.
The Challenge
Rare disease marketing requires more than broad reach and generic messaging. It demands empathy, a deep understanding, and refined targeting. With one in 10 Americans affected by one of over 10,000 rare diseases, the challenge isn’t just developing an effective treatment — it’s delivering it to the right patients quickly.
For rare disease patients, the journey is often
long, isolating, and painful:
Four to five years to diagnosis with many patients waiting five to 30 years
Appointments with specialists can require hundreds to thousands of miles of travel
Repeated misdiagnoses
Limited approved treatment options
A sense of exhaustion and isolation for patients and their families
Science is advancing faster than ever — yet the way we find, reach, and support patients hasn’t kept pace.
How Swoop helps
rare disease brands
Swoop combines privacy-safe targeting, predictive intelligence, and real patient communities. We’re empowering rare disease brands to reach patients and caregivers earlier, support them throughout the journey, and accelerate treatment timelines.
We deliver full-funnel impact:
Reach the right patients earlier
Engage HCPs who influence care decisions
Reduce time to diagnosis
Support adherence and access
Build authentic patient connection
Because in rare disease treatment, time isn’t just a metric.
It’s everything.
Our solutions
for rare disease brands
Predictive Audiences
Find patients who show patterns consistent with being undiagnosed, preparing for a provider visit, or struggling with adherence — without accessing personal or medical data.
Swoop Communities by MyHealthTeam
Real rare disease communities powered by lived experience where members feel seen, heard, supported, and connected.
Coordinated DTC and
HCP Strategies
Unify audience development, messaging, and timing across all channels so patient and physician journeys move forward together.
Swoop Agents
Conversational AI and intelligent search transform the brand.com into a personalized experience which helps patients access to:
• Financial assistance
• Clinical trials
• Education and resources
• Find an HCP tools
Swoop Piper GenAI Platform
Turn intelligence into action with virtual patient focus groups, HCP persona analysis, message testing, and real-time data exploration.
HCP Pro Suite
Go beyond traditional NPI list targeting. Prioritize the physicians who genuinely shape patient outcomes, including:
• High-volume referrers
• Influencers and researchers
• Persuadable
• Loyalists
Why leading rare disease brands choose Swoop
Partnering with Swoop delivers outcomes that matter:
Earlier identification
Reduced time to diagnosis
Better adherence and access
Authentic patient support that improves lives
Supporting rare disease patients isn’t just about finding them. It’s about understanding them, empowering them, and navigating the path forward with them.
That is what Swoop is here to do.
Patient Testimonials
“I am eternally grateful for this group. I have suffered mostly in silence from this horrible disease since I was a child. Today I was able to get accomplished things normally in this condition I would not have.”
“I really enjoy the articles and videos. I live in a small town and do not know anyone else with an MPN. This group is wonderful to chat with and know that someone else understands how you are feeling physically and emotionally. I drive 50 miles to see a specialist, but he is very good to me and knowledgeable. Thank you for this format, it means alot! Have a great day! ❤️”
“Until I read this article it’s the first time I felt sorta understood concerning my face and what’s going on. Which I never really knew before right now. To the Author of this article thanks very much I could definitely relate and felt understood.”
“I am so glad that I found this site. It is packed with great information and I have a team of wonderful people. Easy to talk to and they all understand the ups and down of this disease. Hoping that someone close to where I live joins and we can get together.”
“I am so glad there is MyKidneyDisease team. It’s so nice to go to your resources for info. My Nephrologist doesnt tell me much. Thank you for being there. I ask enjoy communicating with others.”
“I, in a short span of time, have benefited greatly from the MGteam experience. I understand much more about the disease in practical terms. I have come to understand the various treatments and meds and procedures in much more detail, especially how others react to the treatments. Sharing information and companionship with team members feels rewarding, and that is important to me. It is great to know that others are interested in me and my welfare as well.”
“I am very happy to be a part of the desmoid community. We have so much to learn from each other and our individual experiences with this diagnosis.”
