MyHealthTeam

Understanding the quality-of-life impact of SPMS along with patient desired outcomes can help neurologists develop the most effective approach to treating patients for whom MS is advancing.

Background Narcolepsy is a rare, chronic hypersomnolence disorder characterized by debilitating symptoms, including excessive daytime sleepiness (EDS), cataplexy, and disrupted nighttime sleep. Symptoms most typically appear during adolescence2; however, previous reports suggest that diagnosis can be complicated by lack of symptom recognition or misdiagnoses and may be delayed by >10 years. Real-world information and experiences […]

Objective To understand the healthcare provider (HCP) and parent/caregiver dialogue regarding swallowing challenges of anti-seizure medications (ASMs) in children with epilepsy. Background Challenges swallowing oral medications among children have been shown to affect adherence to treatment. This survey is of critical importance for the practicing neurologist, as it addresses issues related to medication formulation availability […]

Background Obstacles exist for getting patients on disease modifying treatments (DMTs) to slow progression. Understanding patient concerns can enable neurologists to help patients overcome barriers. Objective Research was undertaken to better understand awareness, usage, and attitudes towards DMTs.

Objective To understand patient experiences in their own words, including the benefits and challenges of using ruxolitinib cream. Introductions Vitiligo is a chronic, autoimmune skin disease that results in patches of skin depigmentation. MyVitiligoTeam members organically share their experiences living with and managing vitiligo with one another. This study examines recent treatment conversations centered on […]