Patient Insights

This research underscores the urgent need for a more patient-first approach to lung cancer care.

AD has a moderate to severe impact on quality of life People living with atopic dermatitis (AD) often struggle with its physical symptoms and mental health toll. This research presented at the 2025 Fall Clinical Dermatology Conference aims to better understand the desired outcomes, concerns, and treatment satisfaction levels amongst patients in the MyEczemaTeam who […]

Objective To understand patient experiences in their own words, including the benefits and challenges of using ruxolitinib cream. Introductions Vitiligo is a chronic, autoimmune skin disease that results in patches of skin depigmentation. MyVitiligoTeam members organically share their experiences living with and managing vitiligo with one another. This study examines recent treatment conversations centered on […]

Understanding the quality-of-life impact of SPMS along with patient desired outcomes can help neurologists develop the most effective approach to treating patients for whom MS is advancing.

Background Narcolepsy is a rare, chronic hypersomnolence disorder characterized by debilitating symptoms, including excessive daytime sleepiness (EDS), cataplexy, and disrupted nighttime sleep. Symptoms most typically appear during adolescence2; however, previous reports suggest that diagnosis can be complicated by lack of symptom recognition or misdiagnoses and may be delayed by >10 years. Real-world information and experiences […]

Objective To understand the healthcare provider (HCP) and parent/caregiver dialogue regarding swallowing challenges of anti-seizure medications (ASMs) in children with epilepsy. Background Challenges swallowing oral medications among children have been shown to affect adherence to treatment. This survey is of critical importance for the practicing neurologist, as it addresses issues related to medication formulation availability […]

Background Obstacles exist for getting patients on disease modifying treatments (DMTs) to slow progression. Understanding patient concerns can enable neurologists to help patients overcome barriers. Objective Research was undertaken to better understand awareness, usage, and attitudes towards DMTs.

Background People with Crohn’s Disease (CD) or Ulcerative Colitis (UC) often struggle not only with the physical aspects of IBD, but also the mental health, social and economic ramifications of the disease. Understanding the holistic impact of IBD on patients is crucial to enabling IBD patients to live more fulfilling lives.

Background People living with psoriatic arthritis often struggle with the physical and mental health toll. Understanding the holistic impact of psoriatic arthritis is crucial to treating patients and enabling them to live more fulfilling lives. Objectives To understand the impact of psoriatic arthritis (PsA) and desired treatment outcomes.