Swoop

Background People living with psoriatic arthritis often struggle with the physical and mental health toll. Understanding the holistic impact of psoriatic arthritis is crucial to treating patients and enabling them to live more fulfilling lives. Objectives To understand the impact of psoriatic arthritis (PsA) and desired treatment outcomes.

Background People with hidradenitis suppurativa (HS) often experience feelings of stigma.1 This study aimed to assess how they feel about the impact of HS on their sense of self and how they think others perceive them. Objective To evaluate sources of stigma in HS. To evaluate the dynamics and impact of internal and external stigma […]

Purpose To share a successful example of building a rare disease social network by creating a scalable, connectedcommunity and making patient education readily accessible. Background MyHealthTeam (MHT) has created 61 social networks for people living with chronic health conditions, including 14 rare diseases. The social networks provide individuals living with these conditions an opportunity to […]

Introduction Research was undertaken to better understand awareness and experiences with biomarker testing among patients living with Non-Small Cell Lung Cancer (NSCLC). Additionally, research sought to understand potential health inequities in terms of access to biomarker testing.